Acceptability Analysis, Cultural Aspects and Personal Impact of Diagnosis

Eduardo Cueto Rua, Luciana Guzmán, Cecilia Zubiri, Gabriela Inés Nanfito, María Inés Urrutia, Leopoldo Mancinelli


The authors have performed 1500 surveys on the subject of acceptability of the celiac condition, based on a questionnaire on the frequency of various claims by the celiac community. The questionnaire design resulted from previous meetings in which the authors participated as guest experts. The authors intended to characterize the subjective reactions of the attendants to said meetings. With that in mind, an investigation was made on the age, gender, educational level, number of celiac relatives, time and degree of adherence to the gluten-free diet, clinical features at the beginning of treatment, what issues patients find to be troublesome in every-day life, their wishes when confronted with this peculiar condition, their fantasies and their realistic expectations.

It was found that most of the participants were female and that educational level has a positive impact regarding a complete adherence to the diet. The number of persons with CD in the same family conspires against diet adherence and the most important social issue was not having restaurants with a gluten-free menu.

It was also discovered that the attendants’ hoped-for solution was a cure and that their realistic expectation was to have safe, palatable and affordable food throughout the whole country as well as a law that took notice of their condition. When the 1306 surveys on the Impact of Diagnosis were analyzed, it was found that the exact words used by the physician and the patient's level of education do not play a key role in the time it takes to accept the celiac condition. In addition, it became clear that the words used by the physician have different effects when first heard by an adult with celiac disease and when first heard by a mother of children with celiac disease. These words, according to the authors' analyses, contribute to heighten emotions in patient support groups but definitely hinder the acceptance process.

Palabras clave

celiac, acceptability, cultural aspects, impact of diagnosis

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